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Diagnosis, information to the patient, genetic counselling and Neonatal Screening

Total results in % based on votes of 4 people

Policy

1

National health care systems can decide on providing national neonatal screening for diseases that are treatable or not and can decide on access to genetic data with no need for approval from the EU or other independent body.

2

National health care systems to decide for which diseases to provide neonatal screening but an independent European body will coordinate and advise on what national neonatal screening should be in place and according to which code of practice.

3

European legislation to ensure harmonised neonatal screening for severe, treatable, genetic diseases or when medical utility has been demonstrated. Special authorisation to be obtained from an independent European organisation for untreatable diseases. Genetic data to be protected by a national independent body.

4

Authorisation, monitoring, and evaluation of neonatal screening programmes on European level. An independent European organisation to record tests carried out, and to protect genetic data.

Overview of the new policies developed by players in this event.