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Harvinaiset - Rare Diseases Day - Harvinaislääkkeet

Event: 
Harvinaiset - Rare Diseases Day
Decide kit language: 
Harvinaislääkkeet
Policy positions
Policies votes: 
1 2 3 4 5 6 7
Support +++ 0000000
Support ++ 0000000
Support + 0000000
Not acceptable- 0000000
Not acceptable -- 0000000
Not acceptable --- 0000000
Abstain0000000
New policies votes
New policies votes: 
1 2 3 4
Support +++ 0000
Support ++ 0000
Support + 0000
Not acceptable - 0000
Not acceptable -- 0000
Not acceptable --- 0000
Abstain0000
Participants
Type and amount of participants that took part in this session.
Specific groups: 
parents, relatives, carers
Specific groups: 
healthcare professionals (including researchers) and policy makers

New policies
1

Harvinaislääkkeiden kohdalla lähsetymistavan tulee poiketa tavallisista sairauksista. Jokaisella EU:n kansalaisella tulee olla yhdenvertainen oikeus saada korvattua hoitoa harvinaissairauksiin.