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Harvinaiset - Rare Diseases Day - Finns det en övre gräns för hur mycket pengar som en enskild patient får kosta? – Frågan om särläkemedel

Event: 
Harvinaiset - Rare Diseases Day
Decide kit language: 
Särläkemedel
Policy positions
Policies votes: 
1 2 3 4 5 6 7
Support +++ 0000000
Support ++ 0000000
Support + 0000000
Not acceptable- 0000000
Not acceptable -- 0000000
Not acceptable --- 0000000
Abstain0000000
New policies votes
New policies votes: 
1 2 3 4
Support +++ 0000
Support ++ 0000
Support + 0000
Not acceptable - 0000
Not acceptable -- 0000
Not acceptable --- 0000
Abstain0000
Participants
Type and amount of participants that took part in this session.
Specific groups: 
patients
Specific groups: 
parents, relatives, carers
Specific groups: 
healthcare professionals (including researchers) and policy makers

New policies
1

The most efficient treatment for the patient should be based on both medical and resebilitation. There should be regional equalitation, and it should be based both on the experiences and on the medical experience.
On valittava potilaan kokonaishodon kannalta vaikuttavin hoito, joka on sekä lääketieteellinen että kuntoutuksellinen. Sen on toteuduttava alueellisesti yhdenvertaisesti, ja sen on perustuttava sekä kokemukseen että lääketieteelliseen asiantuntijuuteen.