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HWSA Summer Camp

By HUFERDISThu, 29/07/2010 - 10:33

Part of project
POLKA
Date: 
Fri, 02/07/2010
Facilitator
Organization
HUFERDIS
Beata Boncz
bonczbea@rirosz.hu

The Hungarian Williams Syndrome Association has a developing summer camp for families. This year we invited the members of HUFERDIS to participate and learn our good practices (awarded by EU two times). Parallel with the children and youth training, we organized POLKA sessions for the parents, and in the evening for our volunteers (the professionals of the future).

You can find the summary of the program with many pictures here soon:

http://www.williams.org.hu/modules.php?name=tarsasag&eset=tabor

Topics & kits
Stem Cells
Cross border health care
Neonatal screening
Orphan drugs
Diagnosis, information to the patient, genetic counselling

Results charts

Choose view to display graphs per topic.

Topic Results
Stem Cells view
Cross border health care view
Neonatal screening view
Orphan drugs view
Diagnosis, information to the patient, genetic counselling view

Sessions

This is an overview of all sessions played at the event for which the results have been uploaded. Click on any session to see the votes on the policies.

Decide Sessions Topics
Stem Cells (group 1) Őssejtek
Diagnosis (group 1) Genetikai tanácsadás
Diagnosis (group 2) Genetikai tanácsadás
Neonatal Screening (group 1) Újszülöttek szűrésének
Diagnosis (group 3) Genetikai tanácsadás
Orphan Drugs (group 1) Ritka betegségek gyógyszerei
Cross Border (group 1) Határokon átnyúló egészségügyi
Neonatal Screening (group 2) Újszülöttek szűrésének